What does Pride stand for?
PRIDE stands for “Population Research in Identity and Disparities for Equality.”
When will The Pride Study begin?
We are designing The PRIDE Study now. Enrollment will begin in 2015. If you let us know that you are interested in joining the study, we will contact you when the study begins enrolling participants.
What is a longitudinal study?
A longitudinal study is a research study that collects health information about the same group of people over time. In The PRIDE Study, this allows healthcare providers to understand how lesbian, gay, bisexual, transgender, queer (LGBTQ), and other sexual and gender minority people’s health, lives, thoughts, and experiences change over time. With this information, we can better understand how sexual orientation and gender identity affects health and how to promote health and combat disease.
If I participate in the study, are my responses secure and confidential?
Yes! As doctors and research scientists, we understand that information about your life and health is personal, and it is our priority to keep the information you share private and secure. All communications between you and The PRIDE Study are secure electronic transmissions, and our data centers are physically secured. All our systems meet the requirements defined by federal law (United States Health Insurance Portability and Accountability Act or HIPAA).
How is information collected for The Pride Study?
We want participating to be easy! You can join the study and complete all questionnaires via a computer, tablet, or smartphone. If you don’t have reliable access to one of these devices, that’s OK. Give us a call at 1-855-421-9991 (toll-free) or send an e-mail to email@example.com. We will be in touch with you to discuss other ways to participate including via telephone or U.S. Mail (snail mail).
What does joining the study entail? How much time will I need to commit to be part of the study?
The initial enrollment process takes approximately 10-15 minutes. After that, you will be invited to complete our annual health questionnaire, which is designed to take less than 30 minutes. Some participants may also be invited to take part in additional online studies. Everyone’s participation in The PRIDE Study makes an impact by adding information that we can use to promote health and combat disease.
If I change my mind or am no longer able to participate, what should I do?
Like all research studies, you can choose to stop participating in a study at any time; we hope that you’ll stay in the study for decades, so we can continue to learn about you as your life changes! If you have a specific concern about the study, please let us know. If you wish to leave the study, please contact us so that we can update our records and make sure that you don’t continue to be contacted.
How will The PRIDE Study be in touch with me?
We understand that different people will want us to be in touch in different ways. When you join in the study, you can let us know your preferred methods of being contacted. E-mail is the primary method of communication used in The PRIDE Study, but we can also be in touch with you by text message, U.S. Mail (snail mail), or telephone.
Will the results of the study be shared? With whom? How?
When available, results from The PRIDE Study will be shared directly with you and the medical community through publications and medical conferences. Relevant resources will also be made available to everyone through The PRIDE Study website.
How is the study funded?
Donations from individuals and organizations make The PRIDE Study possible. If you or your organization are interested in supporting The PRIDE Study, you can donate now via the UCSF Foundation site or contact us for more information about monetary and non-monetary ways that you or your organization can contribute.
I’m under 18 years old, but I am a LGBTQ or another sexual/gender minority, can I join the study?
You have to be at least 18 years old to join The PRIDE Study. Please contact us, and we will add you to our list so that we can specifically contact you when you turn 18 years old to see if you are interested in joining.