PRIDEnet is a national network of individuals and organizations that actively engage our community in every stage of how LGBTQ health research is created, analyzed, and shared from The PRIDE Study. Through our Community Partners and an advisory group of health care specialists known as the Participant Advisory Committee (PAC), PRIDEnet builds on decades of work by activists, health advocates, service providers, and researchers to improve the health and well-being of LGBTQ communities.
PRIDEnet is funded by Stanford University and staffed by Carolyn Hunt, Micah Lubensky, Mahri Bahati, Darren Arquero, and Zubin Dastur.
As a participant, PRIDEnet works to ensure your annual participation with the study is an enjoyable experience:
We want you to be included. Many LGBTQ people have difficulty accessing adequate care and achieving optimal health because of a long history of discrimination, stigma, and medical neglect. Many are also marginalized from health care due to other bias related to age, race and ethnicity, language, class, or legal status.
PRIDEnet wants to know about these experiences in a way most accessible for you. That is why joining The PRIDE Study can be done by telephone or on any web-enabled device (computer, tablet, or smartphone).
We want you to feel welcome. Coming out, many LGBTQ people experience rejection from families, friends, and society. Despite these challenges, we remain resilient. Our communities possess a hard-earned wisdom from never backing down in the face of adversity.
PRIDEnet seeks to actively incorporate your input to help doctors and researchers develop a better understanding of the physical, mental, and social health needs of our communities.
We want you to be heard. Like many other groups, the voices of LGBTQ people have been left out of research. Where research has included us in the past, results oftentimes stigmatized us further or were used to the detriment of our community. As a result, we know less about our health and ways to provide the best care. PRIDEnet strives to engage your voices in an intentional way by seeking, collecting, and incorporating input from our Community Partners and PAC members.
In catalyzing LGBTQ health research, how we do our work is as important to us as what we do.
We develop give-and-take relationships.
As participants, we want you to benefit from our study as much as our projects benefit from your input.
We recognize complex identities and communities.
We respect that many of you belong to multiple communities and hold many identities.
We create equity.
Each of our communities have unique health experiences and needs. Our goal is to work with you in the most appropriate way and not in the same way.
We create transparency.
We want you to know what we’re up to and strive to communicate openly and clearly.