PRIDEnet is a national network of individuals and organizations that actively engage our community in every stage of how LGBTQIA+ health research is created, analyzed, and shared from The PRIDE Study. Through our Community Partners and an advisory group of health care specialists known as the Participant Advisory Committee (PAC), PRIDEnet builds on decades of work by activists, health advocates, service providers, and researchers to improve the health and well-being of LGBTQIA+ communities.
PRIDEnet is funded by Stanford University and the National Institutes of Health and is staffed by Cassie Armea-Warren, Alex Armira, Mahri Bahati, Micah Lubensky, Daniel Moretti, Ana Rescate and JT Williams.
As a participant, PRIDEnet works to ensure your annual participation with the study is an enjoyable experience:
We want you to be included. Many LGBTQIA+ people have difficulty accessing adequate care and achieving optimal health because of a long history of discrimination, stigma, and medical neglect. Many are also marginalized from health care due to other bias related to age, race and ethnicity, language, class, or legal status.
PRIDEnet wants to know about these experiences in a way most accessible for you. That is why joining The PRIDE Study can be done by telephone or on any web-enabled device (computer, tablet, or smartphone).
We want you to feel welcome. Coming out, many LGBTQIA+ people experience rejection from families, friends, and society. Despite these challenges, we remain resilient. Our communities possess a hard-earned wisdom from never backing down in the face of adversity.
PRIDEnet seeks to actively incorporate your input to help doctors and researchers develop a better understanding of the physical, mental, and social health needs of our communities.
We want you to be heard. Like many other groups, the voices of LGBTQIA+ people have been left out of research. Where research has included us in the past, results oftentimes stigmatized us further or were used to the detriment of our community. As a result, we know less about our health and ways to provide the best care. PRIDEnet strives to engage your voices in an intentional way by seeking, collecting, and incorporating input from our Community Partners and PAC members.
In catalyzing LGBTQIA+ health research, how we do our work is as important to us as what we do.
We develop give-and-take relationships.
As participants, we want you to benefit from our study as much as our projects benefit from your input.
We recognize complex identities and communities.
We respect that many of you belong to multiple communities and hold many identities.
We create equity.
Each of our communities have unique health experiences and needs. Our goal is to work with you in the most appropriate way and not in the same way.
We create transparency.
We want you to know what we’re up to and strive to communicate openly and clearly.
Oscar Anderson is currently a Senior Research Communications Advisor at AARP, where he has spent 15 years conducting research on older adults and aging. He is focused primarily on technology and media, mental health, and maintaining social connections throughout the lifespan. He is an advocate for research on LGBTQ older adults and has worked to ensure LGBTQ respondents are represented in the research of AARP and its partners. Oscar is an incoming MSN student at Yale School of Nursing. After graduation, he hopes to work in primary care specializing in transgender medicine in order to serve the gender diverse community. He hopes to help address the community's critical need for more compassionate, competent healthcare.
Devin Hursey is an advocate for people living with HIV and public health, from Kansas City Missouri, currently pursuing dual master’s degrees in Public Health and strategic communications at the University of Missouri Columbia. In 2019, Hursey was honored as one of the 40 under 40 in public health by de Beaumont. His local and state work includes: legislative advocacy with the Missouri HIV Justice Coalition, and board membership of Blaqout KC. In addition, Hursey is a steering committee member of the U.S. People Living with HIV Caucus, and a steering committee member of MPACT global action for gay men’s health and rights. Hursey was formerly an appointed member of the CDC/HRSA Advisory Committee on HIV and Viral Hepatitis.
Joelle Maslak is employed as a network engineer for a streaming video company, where she is a leader for the Trans* employee resource group. She has over 20 years of neurodiversity advocacy experience, and is particularly interested in the intersection of gender and neurodiversity. She is also involved in AASPIRE (Academic Autism Spectrum Partnership in Research and Education) team. She co-founded and facilitates a peer support group for trans people on the spectrum. She is currently working towards a second degree in Gender, Women, and Sexuality Studies at Metropolitan State University of Denver.
Kara Sprague (she/her) is the Director of Strategy & Impact at SAGE, the nation’s oldest and largest organization dedicated to improving the lives of LGBT+ older adults, where she has worked since 2014. In this role, Kara is responsible for implementation and measurement of SAGE’s Strategic Plan, providing consultation on program evaluation and impact assessment across the organization, and promotion of a data-informed culture. Prior to SAGE, Kara worked in a variety of program evaluation and implementation roles across HIV services and international development. Kara has a B.A. in Sociology from American University and an M.S.W. from Fordham University.
David Utuone is a gay Sāmoan HIV advocate and community organizer residing in the traditional Tongva and Gabrieleno lands (presently known as San Bernardino, California). He is the current director of Mai Le Pogisā (Out of the Darkness) at a community based organization called The Young Serving All Mankind Our Alofa (SAMOA). He has dedicated his life to raising better awareness and cognizance of sexual health and queer identities both in his local Inland Empire and Pacific Islander communities.
Nikki Alexander-Tumblin, Founder and Visionary of New Orleans Black Pride, is a dynamic force in the world of LGBTQ+ advocacy. With unwavering dedication, she has carved an inspiring path as a Black Queer woman in a male-dominated society, leading a movement that celebrates diversity, equality, and resilience.
Nikki's journey is a testament to her boundless passion for social justice. Her leadership has not only birthed an inclusive haven for the LGBTQ+ community but also serves as a symbol of strength for those facing adversity. Her profound commitment to intersectionality ensures that no voice is left unheard.
A visionary with an indomitable spirit, Nikki has propelled New Orleans Black Pride to greater heights year after year. Her ability to create safe spaces and foster connections has empowered countless individuals to stand proudly in their identities. With a heart full of empathy and a mind brimming with innovation, Nikki continues to break barriers and shatter stereotypes.
Through her tireless efforts, Nikki Alexander-Tumblin has not only brought joy, acceptance, and empowerment to her community but also ignited a beacon of hope for the LGBTQ+ movement. Her legacy as a trailblazer, advocate, and change-maker inspires us all to strive for a more inclusive and accepting world.
DelRio ‘Rio Antone’ Perkins is a Non-Binary Entertainer and Gender diverse specialist with over a decade plus of professional expertise. Acting as both an LGBTQ+ activist and Human rights advocate, Rio has made history after being crowned the first ever MX Las Vegas Trans Pride title holder and first recipient of the MGM Enterprise ‘Spirit of the Lion Award’. Rio is the founder of the media entertainment brand Ladyboy Diaries, Inc. which place focus on dismantling bias societal norms and uplifting disenfranchised voices utilizing various artistic outlets.
Donald M. Bell identifies as a 72 year old single, cisgender, pro feminist, gay or SGL (Same Gender Loving) man of African, Indigenous, and Scots-Irish roots. Don is a third-generation native-born Chicagoan, Southsider, and lifelong White Sox fan.
He is a retired professional in Higher Education Administration/Student Affairs; certified in HIV/AIDS counseling, health education, and outreach; and IDCFS Social Worker. Now at the end of a long hiatus he plans to re-enter the work field in the area of Diversity, Equity, and Inclusion. He has become a recognized resource in the area of aging, in general, and LGBT+ aging in particular. He often presents on those and related intersectional social justice issues.
Continuing his lifelong dedication to advocacy and activism, he assumes a leadership role in several social justice organizations. He is a founding member of the National Leadership Council of the National Organization for Men Against Sexism (NOMAS), the nation's oldest pro feminist men's organization. He is a member of the Board of Directors of The Village Chicago, the largest urban village in the national Village-to-Village Aging Network. He also sits on the Boards of the Jane Addams Senior Caucus and One Roof Chicago, the developers of a proposed intergenerational LGBT-riendly residence for the South Side of Chicago. And finally, he is the nominee of AARP Illinois to Governor JB Pritzker to sit on the newly established Illinois State Commission on LGBTQ+ Aging.
Don is a resident of Town Hall Apartments, Chicago's first and the nation's fourth LGBT-friendly senior residence. And in his spare time, he continues to be the proud father of two adult sons, and seven grandchildren. Life is full!
Rosaia Shepard grew up in Seattle’s Colored District, where, as a student activist in the 1960s, she fought racism, sexism, sexual abuse, as well as sexual orientation discrimination. Over the decades, ableism and ageism were added to the list. Rosaia has held many management, advising, and consulting positions for various enterprises including the Internal Revenue Service, the University of Washington, and Deloitte. Recently retired in Metro Atlanta, she writes nonfiction and volunteers her time supporting Georgia political candidates who advance LGBTQIAP rights. Rosaia holds a B.A. in African American Studies and Literature from the University of Washington and an MBA from the University of Arizona.
Paul Vila is a freelance web developer and writer. He attended New College of Florida, where he graduated with a BA in Political Science and Environmental Studies. His academic work has focused on marrying scientific literacy and in-depth understandings of sociopolitical structures with the goal of disassembling systemic injustices. With that in mind, much of his current activist work centers on outreach for LGBTQ+ health issues, with an emphasis on Latinx communities.
Jeffrey Worthington, known under his moniker "Jaycee Dubyuh", is the founder of the Gaymer Allied People of Color. This movement has one simple mission: to build, house, and protect black and brown queer bodies as they intersect with normative spaces in technology and fandom. Coupled with his decade of experience as a tournament and esports organizer, Jaycee continues to spread awareness of his brand and consult with those in need of guidance through the esports community. As PRIDEnet becomes the latest addition, Jaycee extends a resume of being featured in interviews and panel discussions from several organizations and educational institutions. He looks forward to creating new avenues that will conjoin PRIDEnet with a unique gaming perspective that minorities will be certain to enjoy and learn from.
Lilli Xiang is a 21 year old, biracial, queer, neurodivergent undergraduate student from Texas. Currently, they are pursuing a BS in Psychology and a BS in Integrative Studies with areas in Criminal Justice, LGBTQ+ Studies, and Women and Gender Studies at the University of North Texas. An inaugural graduate of the first Early College High School in their home district, their experiences helped them realize a passion for integrating research and education with youth activism. Lilli focuses on fostering connection and belonging among residents and presents across the state and nation on topics affecting the well-being of diverse college student populations, having won awards in both fields.
Lilli strives to advocate for student perspectives in the professional world. Serving in multiple leadership roles on and off campus, their activism centers student voices at the higher education level in departmental policy adjustments, equitable representation, and program creation designed to meet the needs of every student. Through a national mentoring program, Lilli has advised underrepresented high school seniors across the United States. As they finish undergraduate studies, they look forward to new experiences, furthering their education and community involvement as a lifelong learner.