THE RESEARCH

What are we learning?

Here’s where we tell you how your participation helps make the world better for LGBTQ+ people. Read on to find out some of what YOUR studies have found!

But first, this brief video talks about research questions and how scientists develop them. Sometimes the answer a study gets to a research question is surprising or things don’t work out the way researchers expect. These kinds of results are also considered important and we think it’s our responsibility to report them to you: https://www.youtube.com/watch?v=mrWeLJZydUU

We're committed to getting our results back to the participants and communities who made the research possible. See our Research Dissemination Plan here:

JAMIA Publication – June 4, 2019

Publication #1: How The PRIDE Study Research Platform was Built

Official Title: A digital health research platform for community engagement, recruitment, and retention of sexual and gender minority adults in a national longitudinal cohort study — The PRIDE Study 

Community Summary of Findings

What Did We Do? 

The PRIDE Study is an online study of LGBTQ+ physical, mental, and social health. In 2015, our team built a secure online website to learn about LGBTQ+ health. This website is one of the ways we interact with participants in The PRIDE Study. We also built a national network of organizations to help engage LGBTQ+ people in health research. This network is called PRIDEnet. 

We made the website interactive and fun. We recruited 13,932 people over 2 years. We recruited people of diverse ages, sexual orientations, and gender identities. We recruited people from different geographic locations in the United States. All of the people who joined The PRIDE Study interacted with the website. They completed long annual surveys. The surveys included sensitive topics. About 32% (3,813) of the people who joined were gender minority people. 

What Was New, Innovative, or Notable?

This is the first time an online website and a national network were built for health research with LGBTQ+ communities. We think that this is a cost-effective and empowering way to do research. We think that this type of research will be even better in the future, as technology improves.

What Did We Learn?

We learned that online-only, long-term studies are possible. People engaged with the website and organizations joined our network. We recruited and retained more participants than we thought we would, particularly gender minority people.

What Does This Mean for Our Communities?

We can use online websites like this one to conduct health research and answer important questions. We can get LGBTQ+ organizations more actively involved in health research. We can answer more diverse questions about subcommunities within the LGBTQ+ community. We can provide better information for health care providers and policymakers so that people in our communities get better health care.

What’s Next?

· We continue to enroll people in The PRIDE Study. 
· We engage LGBTQ+ organizations in PRIDEnet. 
· We are producing interesting and relevant research. 
· We are using the input of many LGBTQ+ people.
· We are disseminating research findings to communities.

Action Step:

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation

Mitchell R Lunn, Micah Lubensky, Carolyn Hunt, Annesa Flentje, Matthew R Capriotti, Chollada Sooksaman, Todd Harnett, Del Currie, Chris Neal, Juno Obedin-Maliver, A digital health research platform for community engagement, recruitment, and retention of sexual and gender minority adults in a national longitudinal cohort study–—The PRIDE Study, Journal of the American Medical Informatics Association, ocz082, https://doi.org/10.1093/jamia/ocz082

JAMIA Publication – June 4, 2019

PLOS ONE Publication – May 2, 2019

Publication #2: How The PRIDE Study iPhone App Was Used

Official Title: Using mobile technology to engage sexual and gender minorities in clinical research

Community Summary of Findings

What Did We Do?

The PRIDE Study is an online study of LGBTQ+ physical, mental, and social health. Our team recruited 18,099 participants for a pilot phase (also known as a testing phase). The phase lasted from June 2015 to May 2017. This pilot phase used an iPhone app. 

Of those who consented to join, 16,394 people provided data. More than 98% identified as sexual minorities (people who are not heterosexual or straight). More than 15% identified as gender minorities (people who are transgender or gender non-binary). Participants completed 24,022 surveys. They provided input on 3,544 health topics. They cast 60,522 votes about those topics. 

This article provides details about the app’s features. It also provides information about participants. We wanted to know gender identity, sexual orientation, race, ethnicity, educational level, annual income, and geographic region.

What was New, Innovative, or Notable?

This is the first time a mobile app was used to engage and recruit lots of LGBTQ+ people who aren’t usually included in health research. We think that apps may be useful in other communities that have had negative experiences in health research settings such as hospitals and clinics.

What Did We Learn?

We learned that a lot of LGBTQ+ people joined an online health study. They wanted to talk about health topics. They liked accessing live data via dashboards. 

We had problems. For example, incomplete app testing resulted in a data storage error. Also, lots of people voting at once resulted in slow loading at times. Software problems kept us from easily providing new surveys to participants.

What Does This Mean for Our Communities?

We now have an easier and more accessible way to get health information from LGBTQ+ communities. That means we can ask more specific and nuanced questions, especially as peoples’ lives change. We can give this information back to organizations that serve the health of our communities so that they can do their jobs even better.

What’s Next?

We decided that there might be even better ways to enroll people in this type of study. The app model had problems. iPhones cost a lot. Some people can’t afford them. It was hard to develop an app for Android phones at the same time. 

As a result of this pilot, we developed a web-based research portal. This portal is accessible from any Internet-connected device regardless of the size of the screen. This allows for more diverse ways to access the study, not just from a mobile phone. 

Action Step:

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation

Lunn MR, Capriotti MR, Flentje A, Bibbins-Domingo K, Pletcher MJ, Triano AJ, et al. (2019) Using mobile technology to engage sexual and gender minorities in clinical research. PLoS ONE 14(5): e0216282. https://doi.org/10.1371/journal.pone.0216282

PLOS ONE Publication – May 2, 2019

European Eating Disorders Review Publication – December 2, 2019

Publication #3: Eating Disorder Attitudes and Behaviors Among Gay Men

Official Title: Community norms for the Eating Disorder Examination Questionnaire among cisgender gay men

Community Summary of Findings

What Did We Do?

Many researchers who study health use a survey to ask about eating disorder attitudes and behaviors. We asked gay cisgender (people whose gender identity matches the sex they were assigned at birth) participants in The PRIDE Study to fill out this widely used survey. We analyzed the average scores of their answers.

What was New, Innovative, or Notable?

This is the first study to show the average scores of this survey for any gay men.

What Did We Learn?

People in the study engaged in dietary restraint (20%), binge eating (11%), excessive exercise (10%), laxative misuse (1%), and self‐induced vomiting (1%) at least once in the past 28 days.

What Does This Mean for Our Communities?

These results will help healthcare providers and researchers to use this survey with cisgender gay men.

What’s Next?

We want to understand more about eating disorders in other sexual and gender minority communities.

Action Step:


See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation:

Nagata JM, Capriotti MR, Murray SB, Compte EJ, Griffiths S, Bibbins-Domingo K, Obedin-Maliver J, Flentje A, Lubensky ME, Lunn MR. Community norms for the Eating Disorder Examination Questionnaire among cisgender gay men. Eur Eat Disord Rev. 2019 Dec 2. https://doi.org/10.1002/erv.2708

European Eating Disorders Review Publication – December 2, 2019

Journal of Gay & Lesbian Mental Health Publication - December 17, 2019

Publication #4 What Mental Health Providers Want to Know About Helping LGBTQ+ People

Official Title: 

Supporting sexual and gender minority health: Research priorities from mental health professionals

Community Summary of Findings

What Did We Do?

An internet survey was emailed to mental health providers asking about 62 different topics. We wanted to know which ones are important in their care of LGBTQ+ people. We also asked if there were any other topics that we should include in the survey.

One hundred and sixty-three mental health providers responded:

˙30% were psychiatrists
˙18.5% were marriage and family therapists
˙18% were psychologists
˙13% were social workers
˙13% were mental health counselors
˙7% belonged to several different professions in mental health

Just over half of these providers gave us new topics that were important to their care of LGBTQ+ people.

What Was New, Innovative, or Notable?

Directly surveying providers is not common. Asking providers who care for LGBTQ+ people to help guide a study is new. So, it may take less time to bring study results to the providers who need information to improve care if they were involved in choosing the topics.

What Did We Learn?

Mental health providers said that of the 62 topics, the most important to their care of LGBTQ+ people were:

˙stress related to being LGBTQ+
˙lifestyle factors that support emotional strength and health
˙depression
˙intimate relationships
˙suicide

We learned that there are areas that we did not ask the mental health providers about, but that they would like to more research on.

˙24% wanted more research on relationships among LGBTQ+ people:
      ˙Sexual relationships with many partners
      ˙Family relationships such as LGBTQ+ children and their families
      ˙Community relationships such as how LGBTQ+ people fit into their communities
˙22% wanted more research on how LGBTQ+ and other identities (such as race, ethnicity, immigration status, or disability) affect their health and experiences.

What Does This Mean for Our Communities?

There are opportunities to improve the information that mental health providers have, so that they can better care for LGBTQ+ people. While some topics have been covered in research, they remain important to providers and should continue to be researched.

There are new topics (listed above) we can share with mental health providers that may improve care.

What’s Next?

Study results will be used to help inform the topics covered in The PRIDE Study. Some of the topics, such as depression and suicide, have been researched many times. This study shows there may be more ways to help care for LGBTQ+ people.

Action Step:

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation: 

Clark, Kristen D., Matthew R. Capriotti, Juno Obedin-Maliver, Mitchell R. Lunn, Micah E. Lubensky, and Annesa Flentje. “Supporting Sexual and Gender Minority Health: Research Priorities from Mental Health Professionals.” Journal of Gay & Lesbian Mental Health, December 17, 2019, 1-17. https://doi.org/10.1080/19359705.2019.1700865

Journal of Gay & Lesbian Mental Health Publication - December 17, 2019

Substance Abuse Publication - February 7, 2020

Publication #5: Substance use among underrepresented LGBTQ+ communities

Official/Published Title 

Characterization of substance use among underrepresented sexual and gender minority participants in The Population Research in Identity and Disparities for Equality (PRIDE) Study. 

What Did We Do? 

Substance use can have a dramatic impact on peoples’ personal and professional lives. Over time, substance use can put people at risk of certain types of cancer and cause heart and liver problems. LGBTQ+ community members may be at higher risk of using substances due to increased discrimination and stressful experiences like coming out to unsupportive family and friends. This study looked at substance use among 1,790 LGBTQ+ adults. About 40% (691) of these folks may not have been able to take part in previous research due to having non-LGB sexual orientations such as asexual, pansexual, or queer, and/or identify as genderqueer, transmasculine, or transfeminine. We looked for difference among these groups in the use of alcohol, marijuana, and other illegal or non-prescribed drugs. 

What Was New, Innovative, or Notable?

This is the first study to look at substance use among diverse LGBTQ+ community members, such as people who identify as pansexual, asexual, queer, transmasculine, transfeminine, and genderqueer, and not just lesbian, gay or bisexual. 

What Did We Learn? 

Over half (51%) of the LGBTQ+ people in this study reported binge drinking within the last year, almost 40% reported marijuana used within the past year, and nearly 20% reported illegal or non-prescribed use of other drugs. Additionally, 30% reported feeling that alcohol, marijuana or other drug use had been an issue in their life. This study found that alcohol, marijuana, and other drug use was different among different groups of LGBTQ+ people who have not been part of research on substance use in the past, including transmasculine, transfeminine, and genderqueer people who identify as asexual and queer. 

What Does This Mean For Our Communities? 

This work shows that more research is needed to better understand the effects of substance use in our diverse LGBTQ+ communities. Not all members of this community use the same substances in the same way. So, we need to create better screening guidelines and treatment programs by including diverse people from all sexual orientations and genders to better understand substance use in LGBTQ+ communities. 

What’s Next? 

Alcohol use screening helps healthcare providers to identify and treat patients for possible alcohol use problems. However, current screening guidelines are based on gender and don’t include transgender and gender expansive people. We have already started to look at screening guidelines for possible harmful alcohol use among these groups. 

Action Step: 

Share this study with your friends and family. 

Citation:

Branden T. Barger, Juno Obedin-Maliver, Matthew R. Capriotti, Mitchell R. Lunn & Annesa Flentje (2020): Characterization of substance use among underrepresented sexual and gender minority participants in The Population Research in Identity and Disparities for Equality (PRIDE) Study, Substance Abuse, DOI: 10.1080/08897077.2019.1702610 


Substance Abuse Publication - February 7, 2020

PLOS ONE Publication – April 7, 2020

Publication #6: How to ask for harmful alcohol use with transgender and gender expansive people

Official/published title:

Screening gender minority people for harmful alcohol use

What Did We Do?

We wanted to find out how health care providers can best identify harmful alcohol use for transgender and gender expansive people (people who have genders that are not just binary – meaning not just woman or man, for example, and people who are genderqueer or gender non-binary). We wanted to help health care providers know which questions to ask to know if they need to ask more questions about alcohol use. We used data from The PRIDE Study 2018 Annual Questionnaire. We tested several ways that health care providers could ask about how people drink alcohol and which were best at identifying 1) harmful alcohol use and 2) bad things that can happen as a result of alcohol use. We looked at transgender women, transgender men, and gender expansive people separately from other groups because health care providers don’t have any information on how to treat such patients.

What Was New, Innovative, or Notable?

This is the first study to find out how to ask transgender and gender expansive people for harmful alcohol use.

What Did We Learn?

We learned that gender minority people can be asked about harmful alcohol use with a single question. Asking if they have had “5 or more” drinks containing alcohol on one occasion in the past year was as good as other methods. In addition, asking the question in this way worked well for transgender men, transgender women, and gender expansive people. Answering yes to this question doesn’t mean the person has an alcohol problem. Instead, it is a way for health care providers to know if they should ask their patients more questions about alcohol use or offer services for alcohol use.

What Does This Mean for Our Communities?

Health care providers can now confidently ask their transgender and gender expansive patients about alcohol use. Before this study, health care providers had to use guidelines that were designed for cisgender men and women.

What’s Next?

We need to get the word out about how to provide alcohol screening for transgender and gender expansive patients. It would also be good to study these questions in a healthcare setting.

Action Step:

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation: 

Flentje, A., Barger, B.T., Capriotti, M.R., Lubensky, M. E., Tierney, M., Obedin-Maliver, J., & Lunn, M. R. (2020). Screening gender minority people for harmful alcohol use. PLOS One, DOI.org/10.1371/journal.pone.0231022
PLOS ONE Publication – April 7, 2020

Eating Behaviors Publication - March 27, 2020

Publication #7: Eating Attitudes and Behaviors in Transgender Men and Women

Official Title:

Community Norms for the Eating Disorder Examination Questionnaire (EDE-Q) among Transgender Men and Women

What Did We Do?

We asked transgender men and women participants in The PRIDE Study to fill out a widely used survey about eating disorder attitudes and behaviors. We looked at the average scores of their answers.

What Was New, Innovative, or Notable?

This is the first study to show the average scores of this specific survey for transgender men or women.

What Did We Learn?

Study participants engaged in following behaviors at least once in past 28 days:

Dieting 

Transgender Men 25% 
Transgender Women 28%

Eating large amounts of food in a short period of time

Transgender Men 11%
Transgender Women 13%

Exercising a lot

Transgender Men 8%
Transgender Women 8%

Forcing themselves to vomit

Transgender Men 2%
Transgender Women 2%

Using laxatives (medicines for constipation to encourage bowel movements) for weight loss


Transgender Men 0.3%
Transgender Women 0.6%

Transgender men reported higher rates of eating large amounts of food in a short period of time and exercising a lot compared to the general population. Transgender women reported higher rates of dieting and exercising a lot compared to the general population.

What Does This Mean for Our Communities?

These results will help healthcare providers and researchers to understand how their transgender patients’ or participants’ scores compare to the average transgender man or woman’s score for this survey.

What’s Next?

We want to understand more about body image and eating disorders in other sexual and gender minority communities.

Action Step:

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation:

Nagata JM, Murray SB, Compte EJ, Pak EH, Schauer R, Flentje A, Capriotti MR, Lubensky ME, Lunn MR, Obedin-Maliver J. Community norms for the Eating Disorder Examination Questionnaire (EDE-Q) among transgender men and women. Eating Behaviors.https://doi.org/10.1016/j.eatbeh.2020.101381

Eating Behaviors Publication - March 27, 2020

PLOS ONE Publication - May 4, 2020

Publication #8: Including transgender and gender non-binary people in online sexual and reproductive health surveys

Official Title:

Development of an affirming and customizable electronic survey of sexual and reproductive health experiences for transgender and gender non-binary people

What Did We Do?

Participants in most research studies about contraception, pregnancy, and abortion are cisgender and heterosexual. “Cisgender” means that the participant’s gender is the same as their birth sex. We wanted to know more about the reproductive experiences of transgender, non-binary, and gender-expansive people who were assigned female or intersex at birth. We also wanted to know more about the reproductive experiences of cisgender sexual minority women. We created an online survey to ask about people’s experiences with contraceptive use, pregnancy, and abortion.

We asked about many things in this survey. Examples of types of questions include gender identity, language used for sexual and reproductive body parts, and medical or surgical steps people have taken to affirm their gender. We also asked about sexual attraction and sexual activity, contraceptive use and preferences, and pregnancy history and desires. This study shows how questions in the survey were changed with participants’ input to create a more inclusive and positive survey experience.

What Was New, Innovative, or Notable?

We measured people’s sexual and reproductive health experiences without assuming their gender identity, sexual orientation, or the gender identity or sexual orientation of their partners. Also, we allowed participants to choose words in the survey for different sexual and reproductive body parts and experiences. We hoped that they would feel comfortable participating if their gender identity was different from their birth sex.

What Did We Learn?

We learned new things about how participant input can be used in different ways to improve research. Specifically, we learned that participant input can make the survey a more positive experience for participants, and can potentially improve the quality and accuracy of the data collected. For example, we used participant input in the initial design and in the implementation of the survey. We learned that it takes a lot of time to create a survey experience that is truly participant-centered, but we think this time is well spent if it results in a more positive research experience.

What Does This Mean for Our Communities?

Creating more inclusive and positive surveys for broader groups of sexual and gender minority people will improve their survey experience. Creating surveys with language that people normally use to describe their bodies and bodily activities helps people feel good. We hope researchers can use this survey to understand the sexual and reproductive health experiences of ALL people, regardless of gender identity. Such results can better reflect the gender and sexual diversity that exists in our communities.

What’s Next?

We hope future researchers will offer participants the opportunity to substitute words in order to develop surveys that affirm participants’ beliefs. We hope that future research can find out if using language selected by participants in a survey leads to higher response rates compared to surveys that do not include language selected by participants. We hope that this method will inspire others and will advance the field of survey research for people who have been treated as insignificant in society.

Action Step:

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation:

Moseson H, Lunn MR, Katz A, Fix L, Durden M, Stoeffler A, Hastings J, Cudlitz L, Goldberg E, Lesser-Lee B, Letcher La, Reyes A, Flentje A, et al. (2020) Development of an affirming and customizable electronic survey of sexual and reproductive health experiences for transgender and gender nonbinary people. PLoS ONE. DOI:10.1371/journal.pone.0232154

PLOS ONE Publication - May 4, 2020

JGIM - June 18, 2020

Publication #9: Changes in depression and anxiety levels among LGBTQ+ people coinciding with onset of the COVID-19 pandemic

Official Title:

Depression and anxiety changes among sexual and gender minority people coinciding with onset of COVID-19 pandemic

What Did We Do?

We wanted to understand how the COVID-19 pandemic might be impacting the mental health of LGBTQ+ community members. We compared responses to questions on anxiety and depression from The PRIDE Study 2019 Annual Questionnaire with responses to the same questions collected just after the pandemic began.

What Was New, Innovative, or Notable?

This is one of the first studies to look at mental health and changes in mental health related to the COVID-19 pandemic among LGBTQ+ people.

What Did We Learn?

We learned that people overall had more symptoms of anxiety and depression after the pandemic began (with some interesting exceptions):

• People who weren’t very anxious and depressed before COVID-19 were overall more anxious and depressed after COVID-19 began.

• People who were very anxious before COVID-19 overall felt about the same after COVID-19 began.

• People who were depressed before COVID-19 were overall slightly less depressed after COVID-19 began, though probably not in a noticeable way, as they already were experiencing a lot of depression.

What Does This Mean for Our Communities?

We need to care for ourselves and other people in our communities. We need to check in on how people are feeling and take extra steps to care for ourselves and our loved ones. People within our communities should reach out for professional help to cope with anxiety and depression. Our finding might also mean that we have much to learn about coping in stressful situations from people who are diagnosed with depression.

What’s Next?

We are going to learn more about the impact of COVID-19 on the health of our LGBTQ+ communities by doing more studies on the impact of COVID-19.

Action Step:

See pridestudy.org/study for more information and to share this study with your friends and family.

Citation:

Flentje, A. Obedin-Maliver, J., Lubensky, M.E., Dastur, Z., Neilands, T., Lunn, M. R. (In press). Depression and anxiety changes among sexual and gender minority people coinciding with onset of COVID-19 pandemic. Journal of General Internal Medicine. (2020). https://doi.org/10.1007/s11606-020-05970-4

JGIM - June 18, 2020

Body Image - July 8, 2020


Publication #10: Eating Attitudes and Behaviors in Lesbian Women


Official Title:

Eating disorder attitudes and disordered eating behaviors as measured by the eating disorder examination questionnaire (EDE-Q) among cisgender lesbian women

What Did We Do?

We asked 563 cisgender lesbian women participants in The PRIDE Study to fill out a widely used survey about eating disorder attitudes and behaviors. We looked at the average scores of their answers. We looked at their scores in the following categories: restraint, eating concern, weight concern, shape concern, and global score.

What Was New, Innovative, or Notable?

Historically, researchers have thought that lesbian women cared less about thin body ideals and body image issues than their heterosexual counterparts. This is the first study to explore this theory using the average scores of this widely used eating disorder survey among lesbian women.

What Did We Learn?

Lesbian women engaged in following behaviors at least once in past 28 days: dieting (14%), eating large amounts of food in a short period of time (9%), exercising a lot (5%), forcing themselves to vomit (0.4%), using medicines for constipation to encourage bowel movements for weight loss (0.4%). Scores for weight concern and shape concern were higher than for the other categories. Given that 63.4% of the sample had a body mass index (BMI) considered overweight or obese, weight and shape concerns may be normal for this group. Unlike with findings in other populations, BMI was not associated with restraint in this group.

What Does This Mean for Our Communities?

These results will help healthcare providers and researchers to use this survey with lesbian women in their practices.

What’s Next?

We want to understand more about body image and eating disorders in other sexual and gender minority communities.

Action Step:

See: http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation: 

Nagata JM, Murray SB, Flentje A, Compte EJ, Schauer R, Pak EH, Capriotti MR, Lubensky ME, Lunn MR, Obedin-Maliver J. Eating disorder attitudes and disordered eating behaviors as measured by the eating disorder examination questionnaire (EDE-Q) among cisgender lesbian women. Body Image. https://doi.org/10.1016/j.bodyim.2020.06.005
Body Image - July 8, 2020

Archives of Sexual Behavior - September 2, 2020

Publication #11: What do sexual and gender minority people want researchers to know about sexual orientation and gender identity questions?

Official Title:

What sexual and gender minority people want researchers to know about sexual orientation and gender identity questions: a qualitative study. 

What Did We Do?

Questions about sexual orientation and gender identity are important but aren’t asked enough in research studies. Current questions don’t meet the needs of LGBTQ+ people. Researchers from The PRIDE Study held 9 focus groups in the San Francisco Bay Area and 19 one-on-one interviews all over the country to ask LGBTQ+ people: how are current sexual orientation and gender identity questions not meeting your needs and how could they be improved?

What Was New/Innovative/Novel?

This is the first time such a large group of LGBTQ+ people have been asked for their views on questions about sexual orientation and gender identity and how these questions could be improved.

What Did We Learn?

We learned that current questions often didn’t allow for fluidity in sexual orientation and gender identities, and questions often didn’t capture various identities. We also learned that questions also weren’t specific enough. For example:  

-When researchers ask about sexual orientation, are they asking about our identity, who we are sleeping with, or who we are attracted to?
- When researchers ask about gender, are they asking about gender identity, gender expression (clothing, hair, makeup, etc.), or sex assigned at birth?

The article suggests ways in which sexual orientation and gender identity questions could be improved based on feedback from focus groups and interviews.


What Does This Mean for Our Communities?

Understanding these views could improve how current sexual orientation and gender identity questions are designed, improve the experience of LGBTQ+ people in research, and make sure LGBTQ+ people are more accurately represented in research studies.

What’s Next?

We now need to find out how LGBTQ+ people actually respond to these updated questions and support their use in research studies.

Action Step:

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation: 

Suen, L.W., Lunn, M.R., Katuzny, K. et al. What Sexual and Gender Minority People Want Researchers to Know About Sexual Orientation and Gender Identity Questions: A Qualitative Study. Arch Sex Behav (2020).

https://doi.org/10.1007/s10508-020-01810-y

Archives of Sexual Behavior - September 2, 2020

American Journal of Obstetrics and Gynecology - October 01, 2020

Publication Title #12: Transgender and nonbinary people’s experiences and preferences with abortion nationally

Official Title: 

Abortion experiences and preferences of transgender, nonbinary, and gender-expansive people in the United States

What Did We Do? 

We enrolled transgender, nonbinary, and gender-expansive (TGE) people 18 years and older, who were assigned female or intersex at birth in an online survey. We asked them about their abortion experiences, and feedback on how to make abortion care better for pregnant TGE people.

What Was New/Innovative/Novel? 

These are the first study results on what kinds of abortions TGE people have had, what TGE people want and need in abortion care, and how researchers and health care providers can make abortion experiences better for TGE people.

What Did We Learn? 

About one in ten TGE participants reported having ever been pregnant. More than one in five of the pregnancies they reported ended in abortion. Of the abortions that participants reported, most were surgical abortions. When all participants (regardless if they had already had an abortion) were asked what kind of abortion they would prefer, most said they would choose an abortion with pills (medication abortion) instead of a surgical abortion, because it seemed more private and comfortable. Almost one in three people did not know what kind of abortion they would choose, if faced with that decision.

What Does This Mean for Our Communities? 

These study results may help TGE people get better abortion care. The study shows that TGE people might find it difficult to get the types of abortion that they want, and that they might need more information about what their abortion options are.

What’s Next? 

We need to use these data to teach doctors, nurses, and other health care providers about how to improve abortion care and make their clinics more welcoming for TGE people. Some ideas were to use gender-neutral intake forms and create privacy options for TGE patients. Also, many participants did not know what kind of abortion they would want; TGE people need to be provided with information about abortion options.

Action Step:

See http://www.pridestudy.org/study for more information and to share this study with your friends and family.

Citation: 

Moseson H, Fix L, Ragosta S, Forsberg H, Hastings J, Stoeffler A, Lunn MR, Flentje A, Capriotti MR, Lubensky ME, Obedin-Maliver J. Abortion experiences and preferences of transgender, nonbinary, and gender-expansive people in the United States. American Journal of Obstetrics and Gynecology (2020). DOI: https://doi.org/10.1016/j.ajog.2020.09.035
American Journal of Obstetrics and Gynecology - October 01, 2020

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